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022 _a0279-3695
040 _cOCT
100 _aReaves Regine
240 _aJournal of psychosocial nursing and mental health services
_hSeptember 2024
245 _aExploring psychosocial distress in caregivers of children and youth with special health care needs /
_cRegine Reaves, Giovanna De Oliveira, Angel Johann Solorzano Martinez
300 _aVol. 62 (9) pages 37-46
_bIllustrations:
_c27 cm
500 _aPURPOSE: Caring for a child or youth with special health care needs (CYSHCN) can be overwhelming. Parents and caregivers may experience psychosocial dis-tress, such as depression, frustration, and hopelessness. The purpose of the current study was to gain further insight into families' perspectives on the psychosocial impacts of caring for CYSHCN to identify gaps in health care systems and strengthen systems of support. METHOD: A qualitative descriptive design was used in 16 parents and caregivers. Colaizzi's method of analysis and semi-structured interviews were used. RESULTS: Six themes emerged from this study: (1) Stigma and Isolation, (2) Religion as a Coping Mechanism, (3) Financial Challenges, (4) Bearing the Burden, (5) Familial Denial, and (6) System-Related Concerns. CONCLUSION: Psychiatric-mental health nurses (PMHNs) are in a pivotal position to use their knowledge, skills, and experiences to guide families. PMHNs can also engage communities and enhance mental health promotion to break the stigma associated with having a CYSHCN.
653 _aChildren and youth health care needs
700 _aDe Oliveira Giovanna, Martinez Angel Johann Solorzano
942 _2ddc
_cCR
_n0
999 _c10209
_d10209